First European Expert Meeting on the Rehabilitation of Scleroderma, Rheinfelden - Switzerland

Conference programme

 

Thursday, 27.11.2008

Morning session 8:00-12:00

08:00 Thierry Ettlin CH (Rheinfelden)
Opening Remarks

Scleroderma Rehab: Introduction
08:15 Peter Villiger CH (Bern) 
Introduction
08:30 Alexandra Balbir IL (Haifa)
Multi-disciplinary management in scleroderma
08:45 Michael Buslau CH (Rheinfelden)
Elements of a multi-disciplinary rehabilitation program in scleroderma

Physiotherapy & Physical medicine (Part 1)
09:15 Elisabeth Aberer A (Graz)
Physiotherapy of Systemic Sclerosis
09:30 Anett Reißhauer GER (Berlin)
Physical therapy of scleroderma (part 1)
09:45 Silke Jahr GER (Berlin)
Physical therapy of scleroderma (part 2)
10:00 Will Gregory UK (Salford)
The physiotherapy management of Scleroderma patients: production of a patient exercise leaflet

Education and Psychology
10:30 Jean Cabane F (Paris)
Systemic Sclerosis: patient education
10:45 W. van Lankveld NL (Nijmegen)
Psychological aspect of Scleroderma, including psychological distress, coping
11:00 Toon van Helmond NL (Nijmegen)
The effect of a psycho-educational intervention on distress, helplesness and acceptance,Cognitions,appearance, and self-esteem
11:15 Brigitte Züger CH (Rheinfelden)
Creative Therapies and Scleroderma

Multicenter Studies
11:45 Peter Wieloch GER (Freiburg)
Eclistu manager: a web based software solution to conduct multicenter studies

 

Afternoon session 14:00-18:00

Occupation and Daily Occupations
14:00 Frithjof Haustein GER (Leipzig)
Occupational Scleroderma
14:15 Gunnel Sandqvist SE (Lund)
Daily occupations: self-care, domestic chores, work/studies, and leissure
14:30 Francesca Ingegnoli I (Milano)
Assessment of hand involvement in scleroderma with different functional indices

Disability and quality of life
15:00 Anne Schouffour NL (Leiden)
Effectiveness of a group-based multidisciplinary treatment programme on physical and mental functioning, overall quality of life and patient satisfaction
15:15 Helen Wilson UK (London)
Nursing of scleroderma patients
15:30 Kim Fligelstone UK (Chichester)
Objectives and visions of FESCA - The Federation of European Scleroderma Associations

Scleroderma Rehab: Children
16:00 Uwe Wollina GER (Dresden)
Rehabilitation in pansclerotic morphea of childhood
16:15 Ivan Foeldvari GER (Hamburg)
Pediatric Scleroderma: rehabilitation program for outpatients

Physiotherapy & Physical medicine (Part 2)
16:45 Margitta Worm GER (Berlin)
Hyperthermia and UVA therapy in scleroderma
17:00 Etelka Földi GER (Hinterzarten)
Lymphedema and lymphedema treatment in systemic sclerosis
17:15 M Meroni, N Panico I (Genova)
Peripheral neuropathy in scleroderma and its rehabilitation
17:30 Zoe Stableford UK (Salford)
Podiatry aspects of the management of the patient with scleroderma

Special lecture & Dinner 20:00 - 22:30
Hans Suter CH (Fahmi)
Paul Klee: The influence of his illness (Systemic Sclerosis) on his art

 

Friday, 28.11.2008

Social programme

Visit of the Paul Klee Center (Bern)
Exhibition and guided tour